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HDYO is the only organization who focus solely on supporting young people impacted by HD around the world. Will you help us?

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Research

There’s lots happening in the world of HD research. It is complex and can be difficult to understand. We’re passionate about our work with partners to provide information about research in easy to understand language.

It’s also important to know how you can get involved with research. The first step for most people is to sign up for Enroll-HD. Take a look at our article. We’re also proud to be involved in JOIN-HD, the first Juvenile onset Huntington's Disease Registry. Find out more by clicking below. If you have any questions please email info@hdyo.org

HDYO Survey Series
HD Clinical Trials and Studies
JOIN-HD - Juvenile onset Huntington's Disease Registry
HDBuzz Research News Updates
Enroll-HD

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

Kids Teens Young Adults Parents and Family JoHD Friends Professionals