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Links

01 Octombrie 2021

Huntington's Disease Youth Organization

HDYO are mai multe informații despre HD disponibile pentru tineri, părinți și profesioniști pe siteul nostru:

www.hdyo.org

General Huntington's Disease Websites

Huntington's Disease Research

  • HDBuzz - A website for people from families affected by Huntington’s disease to learn about the latest research in an easy, understandable manner.
  • Enroll-HD - The official website for Enroll HD, a worldwide research study that almost everybody from a family affected by Huntington’s disease can join and participate in.

Youth Websites

  • YPAHD - The Huntington’s Society of Canada’s official youth group, where Canadian youth can join up and receive support.
  • NYA - The Huntington’s Disease Society of America’s official youth group, where American youth can join up and receive support.
  • Scottish Huntington's Assoication - Youth - The Scottish HDA’s youth website.

Huntington's Disease Associations & Organisations

Discuss

  • CHDI - The Cure Huntington’s Disease Initiative. They are a not-for-profit research organization devoted to developing drugs that will slow the progression of Huntington’s disease.
  • EHDN - The Euro-HD Network website, with lots of information about research studies and study sites throughout Europe.
  • FACTOR-H - involves people coming coming together to help people affected by Huntington’s disease and living in conditions of extreme vulnerability.
  • IHA - The International Huntington’s Association’s website. A worldwide organisation that provides support to Huntington’s Disease Associations.
  • Hereditary Disease Foundation - The Huntington’s Disease Foundation have been supporting Huntington’s disease research for many, many years.
  • HSG - HSG: The Huntington's Study Group is a global research group for HD made up of professionals and clinics around the world who conduct studies and trials for HD.

Resources

Conținutul nostru este împărțit în grupuri diferite. Alege grupul care descrie cel mai bine nevoile tale pentru mai multe informații despre HD.

Copii Adolescenți Adulți tineri Părinți și familie JoHD Friends Profesioniști